Belle of the Bowel

Yes, I still fully intend and personally need to write on guilt and IBD, but this Timehop from five years ago today hit hard. This was a scary time because my previous surgery (numero cinco) quite nearly took my life. It was later determined that was mostly due to the extremely poor physical state of my body when I had my fifth surgery. That is why TPN was started. I did the same before my seventh surgery also, and, thank God, the devastating complications that plagued my fifth surgery did not occur after either of my later two major bowel operations. Currently, TPN has been brought up again. Does that mean I will need the just five feet of small bowel I have left hacked on once again… who knows? I am currently awaiting approval for a brand new drug (with the help of God)…  and that does give me hope. Hope of getting off of this wicked, never-ending carousel that is my 30+ year battle with Crohn’s disease.

This was my sweet little Nummy Muffin that I mentioned in my Timehop post. After a long life she has very sadly since passed, but she was always the best little kitty. She never even came near my TPN tubing and was always my best nurse.

Love to all!
-Belle

Strangely, I was happy to have a low hemoglobin four years ago (and still do most of the time), because the blood transfusions work so much faster than the iron infusions for me.

And, yes, I had to have my seventh surgery a few months later. This came only after my doctor told me I would never eat again if I didn’t have yet another operation. At the time I was depending on TPN for all of my nutrition, so that was that. Over two years later, once again, I find two of my doctors recommending that I should go back on TPN feeds. Gee wiz, easy for them say! LOL! I have a huge family obligation this weekend and will consider it more thoroughly when I get back.

I hate going on long trips when I’m sick, but I am just going to have to smile and suck it up… yet again.

I hope and pray that everyone is doing better than I am.

♡ you!
-The Belle

Gee wiz. The Timehop app once again reminds me just how many times I’ve been hospitalized for my Crohn’s disease; this time in the ICU four years ago. Dad (bless him) brought my laptop and, thank God, I didn’t have a reaction to my blood transfusions.

I hope and pray all are well.

-The Belle