2014: Our year of IBD Awareness

12 Jan

I recently came across these and just had to share. (facebook.com/lifeaftercrohns)

image

Cure Crohn’s disease in 2014!

image

Take the IBD awareness pledge!

I hope and pray that, so far, 2014 is treating you well!

~The Belle

Hope you had a…

9 Jan

…happy, healthy (who are we kidding) holiday season!

As a universal truth for everyone, this belle has had quite a hectic Christmas season and have not had much time, or energy, to blog. Though, it has been in my thoughts quite frequently.

Image

Naughty Crohnie Elf on the Shelf. (Is it just me, or is this new Elf on the Shelf tradition just a bit creepy; good and naughty?)

How is my own health… “okay,” I suppose? Man, do we serious chronic illness suffers use the word “okay” way too much. Almost as much as “I’m fine.” Maybe I should have a resolution this year to be 100% honest when asked how I feel.

Such as: “Meghan, how are you feeling?”

Instead of saying “okay” or “fine” saying: “Like a steaming pile of crap… and isn’t that ironic!”

Will this belle follow through on this resolution? Maybe somewhat, but not much. Truthful answers bring their own myriad issues, but that is an entirely different, and long, post for another time.

What I am praying for ALL of us IBDers in 2014…

Image

Cure IBD in 2014!

Blessings to all who have stumbled upon my lonely little blog about bowels!

~The Belle of the Bowel

Six Common Misconceptions about the Chronically Ill | Psychology Today

12 Dec

http://m.psychologytoday.com/blog/turning-straw-gold/201312/six-common-misconceptions-about-the-chronically-ill

Wonder article on myths surrounding serious chronic illness.

T-shirts for an awesome cause!

11 Dec

image

Alex Davidson is a beautiful 20 year old young woman in the Johns Creek area who is braving her final days due to Crohn’s disease complications. (I wrote about her on this very blog a few weeks ago.) The t-shirts that she helped design are now available for a couple more days. The sale of the shirts will help support her and whichever cause sells the most is awarded $5000. I bought mine yesterday and can’t wait to get it! I hope you will consider it, too. It would make an awesome holiday gift. Alex is an amazing young woman! Her shirt is the super cool owl design.

Click here to order shirt.

If You Can Not Hover, You Must Cover

10 Dec

Local Woman Glued to Toilet Seat

Okay, my good Southern mother (actually from Ohio) taught me when I learned to use the potty (I was one year old, prodigy all the way)  that you should NEVER sit on a public toilet seat. Also, that you should NEVER touch the flusher in a public restroom. Only your foot should be allowed to come in contact with with that germ-laden beast, no matter how high that sucker is. (Due to that I was able to win the gold medal on the tumbling floor exercises in gymnastics at the 1996 Atlanta Olympic games.) To say my Mom was/is a germaphobe when it comes to her kids, might just be the understatement of the century. Ironically enough, one of the MANY “theories” out there on the causes of Inflammatory Bowel Disease is that kids can develop it from being too clean. Go figure.

Flush

Silliness aside, my heart is broken for a poor woman who got herself glued to a toilet seat with an industrial glue by a prankster at a local Atlanta Home Depot store. Okay, first I was thinking how this poor soul should have known better than sitting directly on the seat with no “protection.” Then I started thinking about myself and the (thank God) very few times I have had such urgency to have a bowel movement due to my Crohn’s disease that I had not one second to spare while out and about (and you are just praying that you are at a nice hotel’s public restroom and not the one at the back of a 30 year old Texaco gas station that you need to ask the attendant for the key with a small tire attached to it to get in.) This can also be true for women with urine urgency issues.

My prayers are with this lady and I totally agree, the first responders should have gotten her to the hospital before attempting to remove the seat, instead of using WD-40. Ouch! What a crazy world we live in.

~The Belle

Belle Back in the Hospital

4 Dec

Thank goodness this Crohn’s disease flare hospital stay only lasted four days. I got out the day before Thanksgiving. I am posting these pictures just to show that you can’t judge someone’s health just by the way they look. It is a serious problem that many of us have faced and I thought IBD Awareness Week would be a good time to share. (I’m showing off my new portacath in my hospital pic. It’s nice not to have to be stuck a zillion times. lol.)

image

image

Don’t judge, we are ALL fighting a battle.

~The Belle

Prayers and Insomnia for Alex Davidson

14 Nov

It is just after 5:00 a.m. and I have been awake for most of the night. I do this often when I have days like yesterday. To say I’m not a morning person doesn’t even come close to expressing my abhorrence for all things a.m.; and always has. Most of that is due to the fact that my Crohn’s disease is almost always at its absolute worse in the early hours. So, days like yesterday, when I spent most of the morning on the toilet, or feeling like someone was stabbing me in the lower gut with a flaming hot medieval sword, or both at the same time. A familiar panic struck me as I basked in this oh so common never-ending nightmare… I have to go out today. First to let some dogs out for a client and then to a doctor’s appointment which could not be postponed. Thank God the pain subsided a bit and I was able to put on my big girl panties on (pun intended) and go. There have been people in my life that I wish could understand what a HUGE ordeal just getting out of the house can be when you have a serious chronic illness. Somedays are so bad that the simple act of getting out of bed, or even brushing your hair and teeth, can be the equivalent of reaching the summit of Mt. Everest for the healthy. This is one of those nights that I’m feeling better. On these precious occasions, when everyone else is sleeping I can enter my own little world. Quiet, mind awake and absurdly alone. I love it, but I don’t love a big contributing factor currently surrounding my insomnia…

This post isn’t about me, it is about Alex Davidson.

This is Alex.

This is Alex.

This is also Alex. Twenty years old and in her final days due to Crohn's disease complications.

This is also Alex. Twenty years old and in her final days due to Crohn’s disease complications.

Less than a week ago, I saw a story about beautiful Alex and her parents heartbreaking ordeal on a local news channel. The Davidson family has hardly left my mind or prayers since I first heard about it. I have broken into tears on more than a few occasions and I am pretty sure this has a lot to do with my more than usual sleepless nights. I can’t even imagine how Alex’s lovely parents and family are able to cope.

http://www.wsbtv.com/news/news/local/family-searches-new-home-daughter-dies/nbkSr

There is an update to this story. The Davidson’s scumbag landlord did not relent, but, praise God, the family found another home not far from this one and are moving in this weekend. Many have already paid for the first few months of rent. I ask you to also PLEASE visit the site below and make a donation to Alex and her family. I know times are tough for a lot of us, but I know even a small donation would mean the world to this family. They also ask for our prayers.

http://www.youcaring.com/medical-fundraiser/beautiful-beyond-the-pain/104060

 

Obviously, this story is so personal to me. (Here come the tears again.) It is literally a miracle that this I am still here. I am not the one that has suffered for over 30 years of me having very Crohn’s disease. It is my parents. There is nothing worse than to watch a child that you brought into this world suffer from an unrelenting and unspeakably painful illness. I wouldn’t wish that on my worst enemy, not even the piece of garbage landlord that threw this remarkable family on the street. As a mother and father gaze into the eyes of their newborn, all the hope in the world is in this tiny bundle. My prayers are with the Davidson’s, my parents and all of the families in the world that watch their children suffer. It is tragic and unnatural. Alex, you are my hero. Because of you, so many people now know just how serious this disease is. IBD is so much more than a “potty illness.” May God bless you here and in heaven. Keep up the fight, you are a brave warrior woman!

All my LOVE,

Meghan (a.k.a. Belle of the Bowel)

THIS!

7 Nov

I heard THIS recently. Amazing, beautiful, beyond relatable and heartbreaking.  Phetote Mshairi has expressed in just over two minutes and thirty seconds the true horrors of what living with Inflammatory Bowel Disease is. Bravo! If you, or someone you care about has IBD, I implore you to listen.

IBD Spoken Word

http://m.soundcloud.com/phetote/sets/outlasting-the-pain?utm_source=soundcloud&utm_campaign=share&utm_medium=googleplus

Hospital Vignettes

2 Jul

I very recently spent a week in the hospital, due to another bad Crohn’s disease flare. What’s a girl to do while being left in a tiny room with absolutely no view, very little real food to eat, a cable TV service that has the channel line-up of 1995 (Why is it that they spent all that money on replacing all of the TVs in the hospital to HD flat screens and then not offer any channels actually in HD!) This is all going on simultaneously while I’m being given massive doses of IV steroids, pain medicine and God knows what else. I was SO sick those first couple of days I was there, but after a few doses of “the juice” I was feeling pretty darn… perky. Now what does a newly perked up gal do to whittle away her time “inside,” and bonus be sorta a artsy fartsy in process? I decided to take some pictures of “hospital life.” Following the photo sessions I made the  artistic decision to apply filters on them for a much more pretentious, abstract, avant garde, hipster look.

Truthfully, I really like how these came out.

image

IV pole, thank you for always making me feel like a dog tied to a tree. You are really good at it!

 

image

MY AMAZING IV! My veins are awful. The ER nurse got one in my AC and it lasted the entire week!

 

image

Blood clot prevention “legwarmers.” All the rage on Paris runways this season.

 

image

I always say, “when in the hospital, always ensure that your that your pudding matches your pajama bottoms.” It’s kind of my mantra.

 

image

My clear liquid breakfast, featuring beef broth! If you didn’t wake up nauseated, congratulations, you now are.

 

image

I AM IRON WOMAN!

 

image

Cat pajama bottoms with my good luck shamrock t-shirt. A fave of mine.

 

image

My Sprite and ginger ale horde.

 

image

I’m assuming that this lime sherbert is 100% all-natural. I am also assuming the factory it came from is located next door to a nuclear waste plant.

 

image

Coleslaw and fresh tomato, apparently the hospital’s idea of a “bland diet.” They are improving, during my last stay they served me up some collard greens and hot sauce. No joke.

 

image

The most wonderful grilled cheese ever… or maybe it was the IV steroids making it seem that way. Nah… it rocked.

 

I can eat (sort of) and my pain has lessened slightly, so it’s time to go home. I estimate I’ve been hospitalized 50-75 times throughout my 30 years with this horrible disease. It never gets easier. Finding fun, humor and even creating cheesy art is a necessity in my life. I am so happy to be home.

-The Belle

I Would Like to Dedicate this Next Song to the Bane of My Existence

9 Mar

Feel free to enjoy the soulful vocal stylings of the fabulous Ms. Christina Aguilera. Yes, I know “Fighter” is about a man who did her wrong, but I think it also speaks to those of us living day to day with Inflammatory Bowel disease,  or any chronic illness warriors. I have lots of other songs that could go in this category playing in my head. Must make a Crohnie mix tape for y’all! (For all the kids out there I hyperlinked the words “mix tape” to a Wiki page that can explain to you what they are and how rad and awesome they were.)

After all that you put me through,
You think I’d despise you,
But in the end I wanna thank you,
‘Cause you’ve made me that much stronger

Makes me that much stronger
Makes me work a little bit harder
It makes me that much wiser
So thanks for making me a fighter
Made me learn a little bit faster
Made my skin a little bit thicker
Makes me that much smarter
So thanks for making me a fighter

Keep fighting IBDers!

~BOTB